tag:blogger.com,1999:blog-2382053184390218829.post6569615750366400615..comments2021-05-16T04:28:00.889-07:00Comments on Chiari Malformation: When we fall behindUnknownnoreply@blogger.comBlogger9125tag:blogger.com,1999:blog-2382053184390218829.post-25838661291882260502008-02-11T16:07:00.000-07:002008-02-11T16:07:00.000-07:00Ugh. That must have been SO uncomfortable--physic...Ugh. That must have been SO uncomfortable--physically and emotionally. I think so much of it goes back to the fact that we "look" ok; it's easy for others to forget that we're not. <BR/><BR/>I have a similar situation coming up this weekend--some friends bought me a ticket to go with them to see Rick Springfield in concert (please, tell me you know who that is--that I'm not THAT old.) Anyway, I'm nervous that I'm going to be the one bringing everyone down, etc. just because I can't keep up physically. (Not that I'm going to be attacking Rick on stage or anything but you know what I mean.) It's a struggle for me to stay up past 9 pm sometimes!<BR/><BR/>I hope that you've heard back from your friend and that getting everything out in the open has helped.lzwittyhttps://www.blogger.com/profile/06666441861865531560noreply@blogger.comtag:blogger.com,1999:blog-2382053184390218829.post-91958962892472603482008-02-11T11:14:00.000-07:002008-02-11T11:14:00.000-07:00Keesha!Iam back on! My internet explorer is crupt,...Keesha!<BR/><BR/>Iam back on! My internet explorer is crupt, so I can't get on that way, Using firefox, which is limiting me. <BR/><BR/>You did as much as you could and you did get to spend some time with her, for that I am sure she is greatfull.<BR/><BR/>Love<BR/>NoraNora :)https://www.blogger.com/profile/10752074244684356735noreply@blogger.comtag:blogger.com,1999:blog-2382053184390218829.post-48068554441699742102008-02-11T08:19:00.000-07:002008-02-11T08:19:00.000-07:00I know what you mean Roz. The problem was that I w...I know what you mean Roz. The problem was that I wasn't aware we were going to more than 1 place. I was told we were going to 1 store real quick for S's mother to pick something up. I was also in a city a few hours away. :(Zipperheadhttps://www.blogger.com/profile/05680400883267736308noreply@blogger.comtag:blogger.com,1999:blog-2382053184390218829.post-78202579160763332442008-02-11T07:20:00.000-07:002008-02-11T07:20:00.000-07:00I know exactly how you feel . What I do is , befor...I know exactly how you feel . What I do is , before I even go , I think well how long is it , how much walking is invovled , whats the weather like , who am I going with , etc etc. If there is going to be too much walking or if one of the persons I am going with is a lets say go getter I decline and say mabye next time. Then again if its going to be a short trip , not much walking etc then I say sure but I will have to leave at such a time. they say great . I say well the old body aint what it use to be. Usually everybody I go with knows my circumstances , so I have to be lucky that they still include me . Now thats a true friend. Take care . Rozmy lifehttps://www.blogger.com/profile/08616374612910238139noreply@blogger.comtag:blogger.com,1999:blog-2382053184390218829.post-21121718897439735412008-02-10T17:43:00.000-07:002008-02-10T17:43:00.000-07:00I'm really really sorry this all happened. It is h...I'm really really sorry this all happened. It is hard for people to realize and come to terms with us. They need patience. No one in my life can really relate how hard every day is. It's such a teeter totter. You know, though. I know that you know. You are the only one.(and Sharon,Leslie, and Linda and Lace)BillyBobhttps://www.blogger.com/profile/15697668141858001717noreply@blogger.comtag:blogger.com,1999:blog-2382053184390218829.post-27638430673338563992008-02-10T14:58:00.000-07:002008-02-10T14:58:00.000-07:00((((((((((Keesha)))))))))) Your friend should unde...((((((((((Keesha)))))))))) Your friend should understand, I'm so sorry that the trip wasn't what you had hoped it would be. Remember to count your spoons :)Lesliehttps://www.blogger.com/profile/04338276170672591194noreply@blogger.comtag:blogger.com,1999:blog-2382053184390218829.post-70553492398037899052008-02-10T14:14:00.000-07:002008-02-10T14:14:00.000-07:00Oh Keesha... It sounds like a near impossible situ...Oh Keesha... It sounds like a near impossible situation, but I think your friend will do her best to understand. Remember the spoons doll, you have to save some and not spend them doing stuff you don't need to do. I'm so sorry you weren't able to attend the shower, but you were there for the other stuff. I'm praying for you now and always.Lesliehttps://www.blogger.com/profile/04338276170672591194noreply@blogger.comtag:blogger.com,1999:blog-2382053184390218829.post-16601164439211457252008-02-10T13:01:00.000-07:002008-02-10T13:01:00.000-07:00I don't know what to say to comfort you. Please d...I don't know what to say to comfort you. Please do share with your friend what you are going through. They will understand completely. I am sure they would have made other accommodations had they known. Good that you wrote the email. <BR/><BR/>I pray that you are resting now and feeling better. You're in my prayers.KaiVitihttps://www.blogger.com/profile/03374696933373334699noreply@blogger.comtag:blogger.com,1999:blog-2382053184390218829.post-84606824264449787502008-02-10T12:54:00.000-07:002008-02-10T12:54:00.000-07:00K,I don't know what to say. I wish you were able ...K,<BR/><BR/>I don't know what to say. I wish you were able to enjoy the day without getting sick. I wish you were able to share with her the surgeries and how your health affects your daily activities. I think your friend would've understood. <BR/><BR/>I pray that you are better now and resting. You are in my prayers.KaiVitihttps://www.blogger.com/profile/03374696933373334699noreply@blogger.com