Brainaversary, daughter's sleep study

3 years ago today was the first of the brain surgeries. The beginning of...the end?

No news yet on what to do with this ginormous growth in my brain. Each day that comes and goes is an excruciating wait.

This afternoon I finally got the results on my 5 year old's sleep study that was done August 1st. Better late than never (that's what we get for living where there are only two pediatric pulmonologists). The doctor said she has serious apnea and severe disturbances and needs a second study to be fit properly for the CPAP and get her oxygen level under control. I can hardly wait to see if getting more than 3-4 hours of sleep for the first time in her life will bring any positive change in her behaviors. We were to have a meeting with the school psych, teacher, and principal this morning regarding her suspension last week and her IEP but the psych's grandmother had emergency surgery last night so we rescheduled for next Wednesday.