2nd procedure

Wednesday I had the other procedure done. I had some diverticulosis, which surprised the doctor since apparently it's rarely seen in someone so young. Another area had a 'cobblestone' appearance to it, which is a common sign in Crohn's disease, so it was biopsied to check for that. I'm to call the office on Monday to go in and see her this week to get the result of the biopsies from this and from Friday's thing as well. I'll post some pics & descriptions below.

Just a reminder from those newer to the blog, but I have had a CafePress site since Christmas Day 2004. Wow, time flies doesn't it? There are lots of things to pick from to spread awareness for Chiari & Syringomyelia, for both patients, family, and friends. 100% of profit goes to American Syringomyelia Alliance Project, a 501(c)(3) who awards a $200,000 research grant every year, and publicly releases its findings. As you are likely well aware, the government has fallen far behind in helping fund a cure; more people have CM and SM than MS, Parkinson's, ALS, and Huntington's Chorea put together, yet those disorders (which certainly need as much research as possible of course) have had a couple hundred thousand research grants funded by the government, while CM & SM have had ELEVEN. Not eleven thousand. 11. And those were completed by the same 3 researchers (no fresh minds or ideas brought in). This is where ASAP has stepped in; they are funded largely by the public, so projects such as patient fund-raisers like my own, going strong for 5 years now, are critically important and support from people like you mean the world.

When you shop at my store, not only do you spread awareness when you wear or use the items, you directly fund a cure for these disorders, as I give the profit to the Research Fund. All you need to do is look at the side of the page and click on the graphic for CafePress.

Diverticulosis


Cobblestone Appearance, possible Crohn's


Esophagus Rings, sign of food allergy disease


Gastritis, red inflamed tummy

Raising awareness

This is just a quick reminder that I have some great methods of simultaneously raising both Chiari awareness as well as funds for patient assistance and research for a cure.

For more than 3 years, all profits from my Chiari wristbands have gone to Wishes & Rainbows--a 501(c)(3)--for patient assistance (medical travel, medical bills, emergency utility assistance due to hospitalizations, etc). They are dark purple, 100% silicone, and are embossed with CURE CHIARI. The silicone allows them to stretch beyond the hand so they can fit properly on the wrist; they are in the style of the LiveStrong ones made famous by Lance Armstrong's cancer foundation, and are a great way to raise awareness in the community!

I have two sizes for adults-- 7" (this most popular seller is for small and average framed women, small-framed men, and most teens), 8" (for larger framed women, average framed men, and larger framed teens), and a limited amount of small child size at 5 3/4".

Wristbands are 2.00 each and have a 2.00 shipping cost no matter how large the order; if the shipping cost goes over 2.00 I will cover the difference. Insurance is optional for customers to purchase to cover the package after it leaves my hands. Please include with orders how many of each size you would like.

I can accept PayPal and personal check; wristbands are shipped within 1 business day of PayPal payment, and within 1 business day of personal check clearing.

Feel free to contact me with any questions.


While I'm here I'm going to do some shameless plugs. Christmas Day will be my CafePress Chiari/Syringomyelia store's 3rd anniversary. It's hard to believe it's been that long! I designed all the items there and 100% of the profit goes to the Research Fund at the American Syringomyelia Alliance Project, also known as ASAP, a 501(c)(3). I have a design for everyone: CM and/or SM patients, Chiari 0 CMers, family members and friends, people of all ages including infants, clothing, stickers, magnets, pins, tote bags, etc. It's worth checking out.