My son's MRI is scheduled for next week. I'm glad to have it done before I go to Baltimore for surgery a few days later. I admit to being unnerved and fearful last night when he came out of his room to tell us matter-of-factly about having pain in his chest. That was a first, at least he has never told us before of chest pain.
I had PT this morning and am glad it's almost done. On the other hand, that also means surgery is around the corner.
I finished crocheting all the squares for the Babette blanket---well over 100! I marked the progress chart toward the bottom of the blog to 95%. The other 5% I am reserving for the process of attaching them all together. I am putting a picture here but it's a little misleading. It only shows panels 1-8 because my dinner table isn't big enough for 9 and 10, the final two panels. I'll post another picture when they are all connected, and another after I add a small finishing border to complete it.
Monday, November 19, 2007
Son's MRI; Babette blanket
Posted by
Zipperhead
at
5:04 PM
3
comments
Labels: Babette, blanket, child baseball, crochet, MRI, Physical therapy
Friday, September 28, 2007
Today's Brain Droppings
I seem to have fallen into the black hole of sleep-ville the last couple days. I hate when that happens, when I go to nap and just can't get up again for 16, 18, 20 hours? At some point I moved from my bed to the couch but not sure why or when.
The kids started baseball. This is DS's second season, DD's first. She is doing fairly well, considering she doesn't have a clue how to play. Coaches A and J will get her on track REAL quick. I requested them for a reason. Now to just try to get her a nap on baseball days is another story. Practices are twice a week and boy does she ever need the naps, especially those days. She is having a hard time getting through the last 20 minutes or so of practice. She got a good hit on a coach-pitch that surprised me.
DS seems to have held up well over the summer. Due to the heat, he didn't play at all. He got a really good hit in and I'm sure he'll be back in gear in no time. His arm is looking pretty good, typical Gumby-boy. He ankles, knees, and now elbows are joining in on the rest of his pops.
His orthopedist had offered to do an MRI immediately a few months ago and said he totally supported it, that there was good reason. I asked to wait. He agreed but said to give him a call in 3 months and check in on how things have been.
What is sticking in the back of my mind is wondering if I should let the ortho go ahead and do the MRI. If he does have am CM+EDS combo instead of "just" (just? sheesh) straight EDS, we could get someone lined up to monitor him. If not, it would certain be fantastic, I love his orthopedist and am comfortable keeping DS in his care for ortho monitoring.
My concern is admittedly personal. If I won't be around, I won't be here to get him to the right team, etc. That's not something I want left for DH to deal with. If there is something to address, and I find out now, I will feel more at peace knowing he is in good hands and there aren't unanswered questions.
Thoughts?
Posted by
Zipperhead
at
7:57 AM
2
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Labels: Chiari Malformation, child baseball, Ehlers-Danlos, excessive sleep


