Chair arrived

My chair came today and I couldn't be happier with it. The measurements taken were spot-on. It rolls incredibly easily and smoothly, the finish is perfect, was comfortable before I even placed the gel cushion, the inward angle of the leg rests and the depth and width combination really took a great amount of pressure off my spinal cord and I could breathe better. I never would have expected that. It goes so easily and effortlessly that my DH is ok with me pushing myself within the house (he is normally very adamant that I obey my doctors and keep to my 3 pound permanent weight restriction).

And for the fluffy part, the deep purple is beautiful and slick! I am going to try to design and create a chair tote to fit on the back for while out and about. I may also try one for underneath it.

So, thanks and praises for this coming through. Well-worth the $375 we had to cover.

I still love my scooter of course, from its high speed to its silver flame job. I feel badly though because I just hope to be able to use it again. Deep down I'm not sure because I know my EDS will never improve so I'm not sure about being able to keep my arms up for the levers any more.

Pincushion day

This morning I had my lumbar MRI. I haven't heard otherwise so I'm guessing the x-rays ruled out tumor etc. since I got the call to come in for an MRI. They ordered it without contrast but once the people at the imaging center saw how many spinal surgeries I've had, they showed the doc in charge and he did an override. So, contrast it was.

We headed over to my clinical trial check-up. I didn't realize visit 4 was a labs day. So, there went some blood. The lady didn't do as nice a job as the MRI girl, constantly shifting the needle around, wiggling it, pushing and pulling, trying to get me to bleed. Anyone who knows me knows I bleed like a stuck pig and my draws are notoriously easy...if you know what you're doing.

My chair is going to take longer than expected; it has an expected ship date of July 2.

I hate being stuck in this situation. I need all my brain stuff replaced, need my right subclavian artery fixed, and God only knows what I've messed up in my lumbar where they did the L2-3-4-5 laminectomies, tumor removal, and filum terminale release (followed by 4 month leak).

And of course I was denied a Medigap supplement by the only company that offers one here. Screwed. We can't pay 20% of all of those surgeries, not again. Not an option. Just doesn't seem right to live in America and not be able to get the care needed to live.