Urology Man

I called my Urology Man's office yesterday and they overbooked the schedule to get me in today due to the issue.

Long story short, the appointment was typical. Another day, another prescription, another test at the hospital. I can't say I'm surprised, unfortunately. I'll fill the script tomorrow while S and J are here. Uro Man warned me it lowers blood pressure so I don't want to be on my own, given my BP crashes anyway.

Things just basically suck. There was however one neat thing about the appointment. Urology Man (who knows more about Ehlers-Danlos than every doctor I have ever seen with the exception of TCI/NY) had trailing him a young woman who was a family practice medical student.

Uro Man, while documenting my situation on his laptop (and there was plenty of it given it's been 2 years since he did my bladder surgery), asked me to explain to the student about Chiari and EDS, the EDS especially. He told me, "I learned about it in medical school in New York but you have taught me the most."

I am really touched by that.

So, the two of us had a talk, and I am really grateful to have had the opportunity (though I wish I didn't need to have the unexpected appointment in the first place). She listened intently about the CM, EDS, and the connection between the two, etc.

The last thing I told her was I hope she will never have an EDS patient because, well, we're a mess.

Cardiothoracic

I called the surgeon's assistant back today since it has been several days since we had last spoken. She'd promised someone would call me the next day and that didn't happen. She put me on hold, saying she would check my file to see if the surgeon put a note in there about me or anything. She returned, saying she couldn't find any of my reports, nada. Can't say I'm surprised. None of my calls with her has gone according to plan. We decided it best for me to come in and talk to the cardiothoracic surgeon on Monday and get the information straight from the source because obviously I'm not going to ever get it from her. He rushed me into testing and for two weeks now she hasn't been able to handle getting him my results so we can move forward to surgery.