Could those of you that are prayerful please pray urgently for a kind man named Grant? He had a CT followed by needle biopsy last week among other tests and it came back as squamous cell carcinoma with the origin being the base of the tongue. He is having surgery on Friday and will be in the hospital a couple days to watch for bleeding due to the area, then radiation 5 days a week for a month. The radiation in the mouth is supposed to be really painful.
Thanks for the prayers. I know they are greatly appreciated. I will print out and pass along any comments or encouragement and give to Grant. It's not easy to be at home and feel forgotten by the world.
My chair shipped ahead of time and will be here Tuesday. I am glad. Glad, you ask, for a chair? Yeah. There's not the strength to support to arms for the scooter so this way DH will unfortunately have to push but at least I can come along.
There has been a TREMENDOUS response at Bev's Charity Challenge and at Crochetville by people who want to help me supply brain surgery patients with caps. I can't thank them enough.
I appreciate their honest too. I've also had friends recently whom I have known since well before I was on any crochet websites, even back when I was first diagnosed, share they've made chemo caps for years but never thought about the fact brain surgery patients and often shaved down to nothing.
I couldn't help but laugh with this one because these are friends who saw me have my head shaved not once, but two, three, four, and five times for surgeries. I posted my hair growth month by now and shared the sages I was going through according to my husband (golf ball, tennis ball, peach fuzz, etc). But for whatever reason, a couple friends just never noticed that my head was soft as a baby's butt;
Regardless of any history, or circumstances, or associations, I want to thank how so many of my new friends hv=vewritten me notes saying they've been making chemo caps for years and feel badly for never thinking about the rest of--it's ok! Your willingness to help is incredible and your kindness will never be forgotten.
Saturday, June 21, 2008
Emergency prayer request
Posted by
Zipperhead
at
5:18 PM
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comments
Labels: baldness, brain surgery patients, chemo caps, crochet craft, neurosurgery
Monday, October 15, 2007
Brain Tumor walk
Saturday's Angel Adventure Walk for the National Brain Tumor Foundation. The weather was perfect, good turn-out, $106,000 raised for research, and we all had a great time.
Nicole (Chiarian), Jackie, Kristina, Jennie, Holley (tumor survivor) and her 3 boys, Holley's mom, and me.
Jennie flew here from New York to do the walk with us. You may remember she traveled from her town all the out to Long Island to spend the night at the hotel and go to my doctor appointments, testing, and to the hospital with me in July. I was so incredibly grateful for her companionship. Her mom has just had her first round of chemo for breast cancer and Jennie from day 1 has been proving herself to be an advocate extraordinaire.
We were talking hair loss, scarves, and hats last week, and the decision I made to shave the day before the 2nd brain surgery since they were going to do it anyway because of the extent of what was being done, the three areas of brain they had to go into. I wanted the control of where and when, instead of losing it to some nameless tech who likely wouldn't even know my name and only would see me as someone who had something wrong with me.
So Jennie's mom thought about that and may decide on doing this as well, should she start to lose her hair.
I found the picture below a few minutes ago. DH took it moments after the shaving. There is another picture in my collage at the top of the blog with me and a hat and scarf that is from the same time.
When something like this happens you feel like the world should stop turning. That everything needs to just STOP for a minute so you can breathe and try to understand because nothing is going to be the same.
Nothing is so important as family and friends. Nothing that is owned, that can be bought, that can be packed in a bag. They're those who are around you.
Jennie's mom raised one amazing young woman, and to have done that, she must be one great lady herself.
Stay strong, know that you can do this, and kick cancer's ass!
Posted by
Zipperhead
at
3:11 AM
2
comments
Labels: Angel Adventure Walk Phoenix, baldness, National Brain Tumor Foundation, New York, strength